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8th PATIENT CENTRICITY & COLLABORATION WORLD CONGRESS 2026 EUROPE

Amplifying Patients Voice in Research, Drug Development and Healthcare

Copthorne Tara Hotel London Kensington, London, UK

Tuesday 25th - Wednesday 26th February 2026

KEY INDUSTRY EXPERT SPEAKERS 2025

EMMA SUTCLIFFE

Global Patient Officer

Ipsen

WENDY ERLER

VP, Global Head Patient Experience, Advocacy and Insights

AstraZeneca

JANELLE A. GOINS

Sr. Director, Global Community Engagement & Advocacy

Gilead Sciences

IFY OSUNKWO

Chief Patient Officer Rare Disease

Novo Nordisk Rare Disease

Dr. Anthony Yanni

Senior Vice President and Global Head of Patient Centricity

Astellas Pharma

Shannon Altimari

Senior Director, Patient Engagement, Global Oncology Lead

GSK

DAKAR DE LA CRUZ

Director, Global Patient Insights & Solutions

Alexion Pharmaceuticals, Inc.

Samantha Knott

Coming Global Patient Partnership Leader Soon

Roche

Michaela Dinboeck

Head of Patient Engagement

Novartis

REBECCA LISLE

Head of Patient Advocacy EU/INT

Jazz Pharmaceuticals

Dr. Holger Storcks

Public Affairs and Patient Advocacy Director DACH

Kyowa Kirin GmbH

Christiane Sonntag

Patient Services Manager

Kyowa Kirin GmbH

Josie Godfrey

Director at JG Zebra Consulting

Joint CEO Realise Advocacy

LINDSAY BIRRELL

Co- CEO, Realise Advocacy, Chair of trustees

Medics 4 Rare Diseases

LARA BLOOM

President and CEO

The Ehlers-Danlos Society

Robert Mitchell-Thain

CEO

PBC Foundation

BOB STEVENS

Group CEO

MPS.SOCIETY

Dawn Lobban

Co-founder & Managing Partner

Amica Scientific

PASCAL DERRIEN

Chief Executive Officer

Migraine Ireland

MELANIE DIXON

Trustee

Cure DHDDS

Rasmus Hjorth

Head of Communication

James Lind Care

Carole Scrafton

CEO & Co-Founder Patient Advocacy Organisation

FibroFlutters

Dr Liz Clarke

Visiting Lecturer and Patient Engagement Theme Lead

Centre for Pharmaceutical Medicines Research, Kings College London

AMY YARKER

Senior Business Development Manager

NIHR Research

NIGEL NICHOLLS

General Manager UK/Nordics & Baltics

Egetis Therapeutics AB

AMIT AGGARWAL

Executive Director, Medical Affairs and Strategic Partnerships

ABPI

Dr. Andreas L.G. Reimann

Managing Partner, Co-Founder

admedicum GmbH & Co KG

Gunnar Schroefel

Senior Director Global Patient Advocacy and Head of the European Patient Advocacy Team

Daiichi Sankyo

Heidi Müller

Head of Patient Advocacy

Galapagos

DR SALLY DEWS

DIRECTOR, Patient Advocacy and External Partnerships

Pfizer

Dr Sumira Riaz

Chartered Health Psychologist and Patient Engagement Consultant

Unboxed Psychology

Victoria Harvey-Jones

Clinical Strategist (Oncology) & Worldwide Patient Integration Lead

Medscape Education Global

STEVE CLARK

Founder and Patient Advocate

Strive for Five

NAOMI LITCHFIELD

Director, Patient Advocacy

Bionical Emas

Dr Sondra Butterworth

CEO & Founder

RareQoL (Rare Quality of Life) and EDIRA (Equality Diversity and Inclusive Research Association)

Hayley Chapman

Senior Program Director

The Synergist

BIANCA SWALEM

Co-Founder

Delta Consulting

MARK HANSON

Co-Founder

Delta Consulting

Emily Pickering

Patient Engagement in Clinical Development Service Lead

NIHR Research

Barbara Valastro

Head of R&D Patient Science

AstraZeneca

TIM GOMERSALL

Managing Director

GIG Health

DR. GUDULA PETERSEN

Global Patient Engagement Lead

Grünenthal GmbH

NEIL BETTERIDGE

Patient Advocate, Sr Director, Europe

Global Alliance For Patient Access

Mark Doyle

Founder

A Life In A Day

CLAIRE BALE

Associate Director of Research

Parkinson’s UK

NIKUL BAKSHI

Research Involvement Lead

Parkinson's UK

Dr Oleksandr Gorbenko

Global Patient Affairs Director

Ipsen

Ines Teixeira Gonçalves

Head of Patient Engagement and Advocacy

Therakos

Glenn Darley

Patient Engagement Lead, EMEA

Recordati Rare Disease

Rachel Grimley

Senior Vice President Drug Discovery

Cancer Research Horizons

Kayuri Odedra

Associate Director, Patient Advocacy UK & Ireland

Alexion Pharma UK Ltd

Diana Heimber

Patient Expert

The Bloc

Lisbeth Snede

President

PiCC United

Kevin Fernando

GP Partner

North Berwick Health Centre

Gaia Presotto

Project Manager

Trainer & Patient Expert

Senior Representative

Available Shortly

Open Health

Novo NOrdisk
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