Patient Centricity & Collaboration World Congress Europe

5th Patient Centricity & Collaboration World Congress 2024 Europe

Patient empowerment and understanding to inspire and create a meaningful impact.

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Patient meets Innovation & Collaboration

Patient empowerment and understanding to inspire and create a meaningful impact.

Introduction
Insight
Who Should Attend

Facilitate Live is very pleased to welcome you to our upcoming Patient Centricity and Collaboration World Congress 2024 Europe.
The two-day Congress aims to build meaningful collaborations within the industry, advocacy groups, clinicians, researchers, and most importantly, patients and their caregivers. Gain practical strategies and best practices on challenges, innovations, technologies, and concepts in achieving this goal.

The congress focuses on a “Patient empowerment and understanding to inspire and create a meaningful impact. ”.

Patient-centricity is a vital aspect in the research and development of biopharmaceutical products, disease management, designing a treatment, clinical trial, or other health solutions. In order to create a patient-centric solution, one must truly embrace a collaborative endeavor with the patient and their caregivers. Establishing a patient-centric solution involves getting feedback from real patients and their loved ones, and making decisions based on their medical conditions, experiences, needs, perspectives, and priorities.

In the current climate where the patients are increasingly becoming more empowered, Lifesciences and Pharmaceutical companies should confront the status quo and welcome the opportunities to embrace a wide range of patient-centered perspectives presented by an emerging ecosystem. While the technology-driven world poses challenges, it also holds opportunities to build a positive patient experience by coordinating the health ecosystem to center on the patient. Reevaluating how it develops and delivers drugs to improve experiences and outcomes and also to continuously adapt and transform to meet the evolving needs of patients.

The industry has come a long way with utilizing a patient-centered approach. The concept has gone from a buzzword to a potential trend, to a perceivable goal. Whilst the industry has advanced in recent years, the evolving healthcare model and ecosystem brought forward by advances in technology and more involved, empowered patients, means true patient centricity is a continuing quest and a compelling commitment.

We look forward to meeting you at the Congress!

Sincerely yours,

Jocelyn Raguindin
Conference Director
Paradigm Global Events / Facilitate Live

GAIN LATEST INSIGHTS ON:

What does patient centricity mean for the pharmaceutical and life science industry?
Why does the industry need to be a part of the patient-centric movement?
Patient-centric initiatives that have a tremendous impact
Successful strategies and best practices to successfully manage patient-centricity in healthcare
How to develop and execute a strategy to improve patient engagement?
Benefits of patient engagement in drug development and discovery process
Evolving challenges and key considerations inthe ethical and compliant use of relevant data
The potential value of providing access to relevant data to all stakeholders
How to maintain mutually beneficial ongoing partnerships between the patients and industry?
Overcoming myriad challenges to make the clinical trial and drug development process more patient-centred or patient-focused
Setting the pace and expectations thru collaborations
Role of researchers in bridging the communication gap between life science industry and the patient it serves
How to achieve a deeper understanding of the patient experience in the real world.
Practical ways in putting the patient at thecentre of a powerful brand

WHO SHOULD ATTEND?

This Congress is beneficial to patients, pharmaceutical, biotech companies, researchers, physicians, patient advocacy groups, regulatory agencies, technology, and healthcare companies.

Network with Presidents, Heads/Chiefs, VPs, Directors, and Managers in the area of:

Head of Patient Engagement
Patient Services
Engagement Strategy
R&D Patient Engagement
Medical Affairs
Regulatory Affairs and Policy
Patient Support and Patient Engagement
RWE, and Data Management
Quality and Compliance
Clinical Development
Programme Management
Supply Chain Management
Patient Access
Clinical Research
Global Head, Digital Accelerator
Patient Engagement & Portfolio Strategy
Patient Support Strategy & Insights
Patient Experience

Medical Affairs, Global Patient Advocacy & Alliances
Government Policy and Advocacy
Digital Patient Experience Lead
Clinical Operations
Clinical Insights and Experience
Head of Strategy, Access Services
Vice President, Site Collaborations and Patient Centricity
Head of Neuroscience
And much more...

Key Industry Expert Speakers

Upcoming 2024 Industry Speakers

Comfirmed speakers Apply to speak

Schedule

Content Rich Program Agenda! Featuring Keynote Presentations, Stream Sessions, Panel, and Round Table Discussions.

Day 1 26/02/2024
Day 2 27/02/2024

Auditorium 1

07:45 am - WELCOME COFFEE & REGISTRATION

08:30 am - CHAIRPERSON’S OPENING REMARKS

Emma Sutcliffe, Global Patient Officer, Ipsen Biopharma

TRENDS & STRATEGIES IN INTEGRATING PATIENT VOICE

8:40 am - OPENING KEYNOTE PANEL: Realizing the importance of patient needs and engagement in improving patient outcomes?

The value of engaging and communicating with the patient in every part of the clinical research process
Examining the right approach for patient and industry to positively impact healthcare costs and patient outcomes through patient engagement
How can patient expertise create significant value to the industry?
What are the best practices and strategies to guarantee that patient centricity is at the forefront of pharma?

Moderator:

Dr Liz Clarke, Patient Engagement Team Lead, Kings College London

Panelists:
Lara Bloom, President and CEO, The Ehlers-Danlos Society

Carole Scrafton, Director & Co-Founder, Flutters and Strutters

Bronwyn Lewis, Global Head of Patient Engagement, Boehringer Ingelheim International

Roi Shternin, Founder & Chief Patients Officer, Chronically

Hayley Chapman, Sr Program Director, PFMD

9:20 am - PLENARY KEYNOTE : Patient 3.0: milestones in engagement from patient empowerment to patient evidence

Empowerment, experience, evidence – the impact of the patient voice
Engagement delivers value as a triple win – for patients, for pharma, for society
Ensuring voice to value in the ‘Patient 3.0’ era

Emma Sutcliffe, Global Patient Officer, Ipsen Biopharma

9:50 am - PLENARY SESSION: Leading bottom-up transformation to bring patient engagement across the business by embracing the full medicine`s life cycle and patient journey

How to merge a company`s mission with the mission of the patient and caregiver community to improve outcomes, both for patients and the business?
How can a company operate in a patient-driven way to create meaningful value?
How do you establish the required change in mindset, relationships – and structures, company-wide?
How do you ensure patient engagement is socialised throughout the company?

Christel Paganoni-Bruijns, Independent Patient Engagement Consultant, Former – Global Head Community Engagement

10:20 - MORNING NETWORKING REFRESHMENTS

10:55 am - SPONSORED SPOTLIGHT: Closing the Gaps in Patient-Centricity: Revolutionizing Medical Education for HCPs

Where are we today with integrating the patient voice into healthcare and HCP-patient/caregiver communication? Why is change needed?
Why the time is now to integrate patient-centricity into medical education for HCPs
How medical education for HCPs can evolve, including patient integration, to provide a holistic approach that supports advancing patient outcomes

Victoria Harvey-Jones, PhD, Associate Director of Clinical Strategy, Medscape Oncology Global

Steve Clark, Patient Advocate Campaigns Ambassador, Cancer Research UK, Volunteer Patient Voice, Strive for Five 10yr CRC survivor
Sarah Halford, Head of Medical Sciences, Centre for Drug Development, Cancer Research UK

11:40 pm - SPOTLIGHT SESSION: A Generative AI approach to Patient Journey creation

Integration of Generative AI with online patient experience data to create patient journeys
Sustainable enhancement of patient-centricity and engagement
Challenges and ethical considerations

Janik Jaskolski, Chief Product Officer and Co-Founder, Semalytix

12:20 pm - IPG Health optimising patient engagement and health management behaviours

Importance of understanding different types of patients and what drivers and hinders their behaviour, before designing and optimising communications
Evolving from multichannel to omnichannel communication delivery to drive measurable engagement and behaviour change
Ensuring content resonates by: involving patients, uncovering and using their language not disease terminology, addressing appropriate EDI and health literacy levels, and meeting PiF TICK certification standards
PiF TICK case study on involving patients to improve user engagement

Linda Cowie, VP, Head of Behavioural Science & Patient Experience, SOLVE(D) Europe, An IPG Health Company

Sophie Randall, Director, Patient Information Forum (PIF)

1:00 pm - NETWORKING LUNCH

2:00 pm - PLENARY SESSION: What People Want Form the Pharmaceutical and Medical Device Industry: the perspective of people living with type 1 diabetes.

The international perspective on what people with type 1 diabetes want from industry, according to international region
The Nobel Prize winning discovery of insulin in 1921 and how that legacy defines what people living with type 1 now want from industry
Type 1 diabetes patient priorities for the pharmaceutical industry and medical device industry
The rise of citizen science and how that changes the relationship that type 1 diabetes patient advocates want to be engaged with in industry research and development
A framework for patient engagement

Hilary Nathan, Policy, Communications & Community Engagement Director, JDRF

2:25 pm - PLENARY SESSION: Setting the pace and expectations thru collaborations

How pain points generate actions
Why it makes sense to work with patient advocacy groups
How to strive creating value to patients, their families and society
What tangible deliverables we can co-create with patient advocacy groups

Gabor Purman, Patient Advocacy Director, Kyowa Kirin International

2:50 pm - PLENARY SESSION: Patients involved in Publications: Writing the future

Why there is a need for Patient involvement in publications framework
What is the framework?
How did we co-create the framework with cross-functional team and patients – the methodology
Ongoing implementation, feedback loops early applications and expected impact

Ana Marija Gjurovic, Global Head Patient Engagement, AstraZeneca

3:15 pm - PLENARY SESSION: Embedding patient centricity and engagement in publications through plain language summaries and health literacy considerations

Publications are a critical element of the research communication pathway in the pharmaceutical and life science industry.
Plain language summaries and practicing good health literacy principles are important tools for embedding patient centricity and engagement in publications.
These tools enable diversity, equity, inclusion, and accessibility of publications and allow researchers to bridge the communication gap to serve patient communities and improve outcomes.

Adeline Rosenberg, Patient advocate & Doctoral Researcher, King’s College London

3:40 pm - AFTERNOON NETWORKING REFRESHMENT

4:20 pm - PLENARY SESSION: Innovating Patient Care in Cancer: AI as a Catalyst for Change

Sharing insights from our collaboration with Stanford University to educate patients on using AI tools in research co-production.
Reflecting on my co-authored work, “Precision Oncology: A Clinical and Patient Perspective”, and the role of AI in data-driven healthcare.
My role as a judge in the European Patient Digital Health Awards and the importance of patient-centric technology development.

Lydia Makaroff, Chief Executive, Fight Bladder Cancer

4:55 pm - PLENARY SESSION: Transforming Healthcare: The Power of Patient-Centricity" – Experiences from Grünenthal as a science-based, privately-owned global pharmaceutical company

In 2022, we asked more than 40 Grünenthal cross-functional global leaders where we are and where we want to go with “Patient Engagement”
Based on this inventory we built and aligned our strategy for Patient Engagement with the following key actions:

1.Building a global network of cross-functional patient engagement colleagues
2.Bringing the patient voice into our organization
3.Building a global platform to share patient stories and initiatives within Grünenthal
4.Building a framework to measure and demonstrate the impact of patient engagement

All of the defined actions are implemented (measurement framework still ongoing) and will be explained to the audience with key learnings and key challenges

Dr Gudula Petersen, Global Patient Engagement Lead, Grünenthal

Neil Betteridge, Co-Chair, Chronic Pain Policy Coalition

5:10 pm - PLENARY SESSION: Leveraging our value proposition through Professional Education and Strategic Alliances .Therakos Institute , our education platform

The goal has been creating Brand authority , by innovating and excelling when it comes to provide solutions to our potential and current targets through face to face and digital initiatives along with strategic alliances with different key professional organizations.

5:35 pm - PLENARY SESSION: From engagement to involvement: bringing young adult cancer patients together with radiation researchers

Young adults often fall into a grey area between paediatric and adult cancer services
We found less is known about radiotherapy compared to other cancer treatments such as chemotherapy
We have used creative ways including working with artists and podcasts to enable young people to influence radiation research in London

Dr Lisa Whittaker, Public and Patient Engagement Coordinator, King’s College London

6:00 pm - CHAIRPERSON’S CLOSING REMARKS

End of Day 1.

Auditorium 1

8:00 am - WELCOME COFFEE & REGISTRATION

8:30 am - CHAIRPERSON’S OPENING REMARKS

Robert Mitchell-Thain, CEO, PBC Foundation

CHALLENGES & POTENTIALS OF PATIENT ENGAGEMENT

8:40 am - KEYNOTE PANEL: Advancing Health Equity Through People - and Patient-Centered Engagement

How companies can advance health equity through people- and patient-centered frameworks.
Specific domains of action for addressing health equity through people and patient engagement;
Success measures of efforts to advance health equity
What can the industry do to promote health equity in the future?

Moderator:

Panelists:
Christel Paganoni-Bruijns, former Global Head Community Engagement, Swedish Orphan Biovitrum AB

Neil Betteridge, Co-Chair, Chronic Pain Policy Coalition

9:20 am - PLENARY SESSION: Devolvement and Implementation of Medical Evidence Patient Centricity framework

The AstraZeneca Global Patient Engagement Team has worked across the development lifecycle to embed patient-driven solutions resolving common development challenges. We will discuss how we uplifted the capabilities of our evidence teams to engage patients across the development continuum and will present examples showing what we do to impact study planning, recruitment and conduct, leading to tangible results for better patient outcomes.

Marie Eckerd, Global Patient Engagement Director R&I, BioPharmaceuticals Medical, AstraZeneca

9:45 am - JOINT PRESENTATION: The Real Cost of Patient Involvement

Limited research into the impact of patient involvement in HTA
The work is a huge undertaking for PAGS especially smaller ones
The impact of involvement on the organisation and individual
Solutions and sustainable future for PAG involvement

Lindsay Birrell, Co- CEO, Realise Advocacy, Chair of trustees, Medics 4 Rare Diseases
Josie Godfrey, Director, JG Zebra Consulting, Co-Founder and CEO, Realise Advocacy

10:10 am - MORNING NETWORKING REFRESHMENTS

10:50 am - PLENARY SESSION: Qualitative Research: Methodologies to Achieve Deeper Understanding of Patient and Carer Experience in the Real World

The development of qualitative research in healthcare settings
What does good look like?
Examples of practical and imaginative qualitative methodologies
The benefits of scientific rigour to develop insight into patient and carer experience.

Dr Liz Clarke, Patient Engagement Team Lead, Kings College London

11:15 am - CASE STUDY: Elevating Patient Engagement Intelligence: A Data-Driven Approach for Driving Meaningful Patient Engagement and Informed Decision-Making for Improved Health Outcomes

This presentation aims to provide a comprehensive overview of the transformative power of data in optimizing patient engagement strategies, leveraging KPIs and metrics, and utilizing patient experience data to inform decisions by the patient community, industry, health care professionals, regulatory/HTA agencies, and the investment community for better health outcomes.

Hayley Chapman, Sr Program Director, PFMD

11:40 pm - PLENARY SESSION: The Patient Partnership Index: how a global pro bono initiative is changing how we ‘do’ patient centricity

The Patient Partnership Index: what it is and why it began
Examples of best practice from the Index to inspire your own patient engagement programmes
Why companies and patient organisations should enter the Index

Jenny Ousbey, CEO & Founder, OVID Health

12:05 pm - JOINT PRESENTATION: The Power of partnership

The journey to empowerment
Walking the talk of Patient Centricity
The potential of non-competitive collaboration

Bronwyn Lewis, Global Head of Patient Engagement, Boehringer Ingelheim International GmbH
Roi Shternin, Founder & Chief Patients Officer, Chronically

1:05 pm - NETWORKING LUNCH

2:00 pm - PLENARY SESSION: Benefits of engaging patients in your clinical trial

How to engage patients in clinical research?
3 reasons why patients are not involved in the design and preparation phase of a clinical trial
3 reasons why patients should be involved in the design and preparation phase of a clinical trial
How can patient feedback contribute to a more successful clinical trial
Where do I start with engaging patients in a clinical trial?

Rasmus Hjorth, Head of Communication, James Lind Care

2:25 pm - PLENARY SESSION: When I use a word,’ Humpty Dumpty said in rather a scornful tone, ‘it means just what I choose it to mean — neither more nor less.’

The problem with “patients at the centre”….
Always a bridesmaid and never a bride!
The need for T.R.U.S.T.
The courage to change

Angela King, Independent Patient Advocate, Independent Cancer Patients’ Voice

2:50 pm - PLENARY SESSION: The Power of Patient Data- by patients, for patients, with patients

How to harness patient power
Using data to improve care
Opportunities for partnership

Robert Mitchell-Thain, CEO, PBC Foundation

3:15 pm - AFTERNOON NETWORKING REFRESHMENT

3:45 pm - PANEL DISCUSSION: The evolution of patient-centred drug development

Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully incorporated into drug development and evaluation.
Patient’s input to improve quality, relevance, safety and efficacy of drug development
Challenges and opportunities for patient-centric product design
The role of respective stakeholders and the way they interact, from the early steps of drug development to access in real life?

Moderator:

Panelists

Carole Scrafton, Director & Co-Founder, Flutters and Strutters
Rasmus Hjorth, Head of Communication, James Lind Care
Naomi Litchfield, Director, Patient Advocacy, Bionical Emas

Dr. Sally Dews, Senior Medical patient partnership Manager, Pfizer

4:30 pm - CLOSING PANEL DISCUSSION: Driving patient-centric healthcare: the new frontier

Understanding the drivers for innovation in pharma
Partnering with patients and placing patient well-being at the core of all initiatives
Real-world data and patient-reported outcomes presents the power and the potential to redesign healthcare
Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
Technologies that enhance the patient-centricity in pharma

Moderator:

Panelists:
Gabor Purman, Patient Advocacy Director, Kyowa Kirin International
Carole Scrafton, Director & Co-Founder, Flutters and Strutters
Roi Shternin, Founder & Chief Patients Officer, Chronically

Janik Jaskolski, Chief Product Officer and Co-Founder, Semalytix

5:15 pm - CHAIRPERSON’S CLOSING REMARKS

Robert Mitchell-Thain, CEO, PBC Foundation

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Testimonials

what people say

Thank you for a good experience with the PARADIGM Global Events… very high level, very good Organization, we overpassed our expectatives, we will be pending for another congress related to pharmaceutical and biotech… we learned a lot, and i think that the content of agenda was state of the art, thank you again.

Salvador Berrios

ERP/ CRM / Product Configurator Manager

The consistently high quality of international faculty was most impressive. It was also obvious that they were carefully chosen not only for their particular expertise but also for their ability to communicate the subject matter to clinical and non-clinical participants alike. As market access consultant for pharma clients of various sizes, I now feel much better prepared to explain the nuances & dynamics involved in bringing their products to market. In addition, I am in a much better position to intelligently advice my clients & help them set realistic expectations

Thomas Martin

Associate Vice President, VCGA - Quintiles

I was impressed with the organization of this event. I attend many conferences per year and find the organizers on site to be detached and not focus on good service to the delegates. This team was even providing weather forecast warning to ensure everyone was aware and made appropriate plans. Well Done.