4th Patient Centricity & Collaboration World Congress 2023 Europe

Patient-Centric Initiatives Across The End-To-End Value Chain

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Patient meets Innovation & Collaboration

Patient-centric initiatives across the end-to-end value chain

Paradigm Global Events is very pleased to welcome you to our upcoming Patient Centricity and Collaboration World Congress 2023 Europe.
The two-day Congress aims to build meaningful collaborations within the industry, advocacy groups, clinicians, researchers, and most importantly, patients and their caregivers. Gain practical strategies and best practices on challenges, innovations, technologies, and concepts in achieving this goal.

The congress focuses on a “Patient-Centric Initiatives Across The End-To-End Value Chain ”.

Patient-centricity is a vital aspect in the research and development of biopharmaceutical products, disease management, designing a treatment, clinical trial, or other health solutions. In order to create a patient-centric solution, one must truly embrace a collaborative endeavor with the patient and their caregivers. Establishing a patient-centric solution involves getting feedback from real patients and their loved ones, and making decisions based on their medical conditions, experiences, needs, perspectives, and priorities.

In the current climate where the patients are increasingly becoming more empowered, Lifesciences and Pharmaceutical companies should confront the status quo and welcome the opportunities to embrace a wide range of patient-centered perspectives presented by an emerging ecosystem. While the technology-driven world poses challenges, it also holds opportunities to build a positive patient experience by coordinating the health ecosystem to center on the patient. Reevaluating how it develops and delivers drugs to improve experiences and outcomes and also to continuously adapt and transform to meet the evolving needs of patients.

The industry has come a long way with utilizing a patient-centered approach. The concept has gone from a buzzword to a potential trend, to a perceivable goal. Whilst the industry has advanced in recent years, the evolving healthcare model and ecosystem brought forward by advances in technology and more involved, empowered patients, means true patient centricity is a continuing quest and a compelling commitment.

We look forward to meeting you at the Congress!

Sincerely yours,

Jocelyn Raguindin
Conference Director
Paradigm Global Events

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WHO SHOULD ATTEND?

This Congress is beneficial to patients, pharmaceutical, biotech companies, researchers, physicians, patient advocacy groups, regulatory agencies, technology, and healthcare companies.

Network with Presidents, Heads/Chiefs, VPs, Directors, and Managers in the area of:

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Key Industry Expert Speakers

Meet Our Previous 2022 Industry Speakers 

JASENKA TIEFENBACH

Head, Value Based Partnerships & Patient Solutions, CSEE Region, Takeda

Per Helbo

VP, Global Program Lead, Ultra-Rare Disease, Global Product & Launch Strategy, Takeda

LU ZHENG

Head of Value Based Partnerships and Patient Solutions, EUCAN, Takeda

Monika Szkultecka – Debek

Vice president of Qualitas Vitae Institute Foundation.

CAROLE SCRAFTON

CEO & Co-Founder Patient Advocacy Organisation, FibroFlutters

Cristina Garcia Garcia

Patient Centricity & Medical Information Lead, Ipsen Iberia

Martin Brunninger

Director General, Department of Health & Social Care for Austria

Begonya Nafria Escalera

Patient Engagement in Research Coordinator, Sant Joan de Déu Children's Hospital (Spain)

Milan Mishkovikj

Vice President of the Alliance of Patients’ Organizations in N.Macedonia – APO

Pascale Cavillon

Global Patient Centricity Director, Ipsen

Christine Von Raesfeld

Founder & CEO, People with Empathy, USA

SUMIRA RIAZ

Head of Health Psychology, Open Health

TANYA COLLIN-HISTED

CEO, International Gaucher Alliance

VANESSA FERREIRA

Head, Global Patient Advocacy and Engagement, CDG & Allies PPAIN

JASMINE MALONE

Head of Patient Content, Open Health

Joao Salazar

Group Account Director, Open Health

Caroline Katzer

Senior Health Psychologist, Open Health

Karen Bailey

Associate Director and UK PCO Lead, Open Health

Schedule

Content Rich Program Agenda!  Featuring Keynote Presentations, Stream Sessions, Panel, and Round Table Discussions.

TRENDS & STRATEGIES IN INTEGRATING PATIENT VOICE

  • Regulations that enables to bring new treatments to patients faster
  • Data infrastructure to make clinical-trial design and delivery more efficient and effective
  • Platforms that facilitate patient enrolment and retention
  • New commercial models to foster discovery of new treatments.
  • Empowered patient
  • Ingredients for moving from vision to implementation:
  • Bringing the organization along
  • The role of the Organizational model
  • Enablers to make PE a reality
  • Prioritising and appreciating the patients’ emotional and mental wellbeing when included in engagement activities
  • Taking time to understand the many factors to be considered when seeking participation and developing added value
    initiatives for those affected by a rare disease
  • Enabling patient and caregiver participation in all patient activities, at all stages of development – from consultation to cocreation
  • Impact of these new innovations on patients and caregivers
  • What difference do these recent innovations have made to their lives?
  • What must be done to accelerate innovations and broaden access at the same time?
  • Benefits of using data to engage patients and improve the trial experience
  • Enlisting partners who understand when and where data, analytics, and industry expertise can make their trials more
    engaging and accessible to the patients they are trying to recruit
  • Lessons learned in future-proofing patient-driven data
  • Doctors should empower patients during the diagnosis
  • The power of a patient-centric diagnosis
  • Empowered patients are active participants in their healthcare
  • Empowered patients drive innovation that helps them and future patients
  • Why diversity and inclusion matter in clinical trial research?
  • Addressing societal problem of healthcare disparities
  • Strategies that research teams can adopt to improve the diversity, equity and inclusion
  • What can the industry do to promote more diversity in the future?
  • Latest guidelines that make healthcare more inclusive

TOPIC FOCUSED STREAMS

PARTNERSHIPS & COLLABORATIONS

  • Harnessing the power of multi-stakeholder collaboration to
    make a scientifically informed recommendation
  • Lessons learned that could benefit the patients
  • Proposed interventions in helping patients to engage
  • Finding common shared ground between groups and build
    tailored programs within lifecycle activities
  • How can the foundational elements of patient-centred care be embedded in the care culture?
  • Effectively setting a common goal to set expectations on both sides
  • Why evaluate partnerships
  • Evaluation steps
  • What to evaluate? Possible metrics
  • What methods can be used
  • Putting it into practice
  • Patients involvement in health care decision making
  • Practical examples to demonstrate approaches to better
    engage patients in their health
  • Evidence needed to understand patients’ experiences of
    the engagement process and whether these outcomes
    translate into improved access
  • Recognising the gaps in our approach
  • Shifting the patient voice from passive to active
  • Listen to the Patient needs and help them to understand
    what the focus of the trial is.
  • Understanding Pharmaceutical costs of trials and research
  • Understand one patient’s healthcare journey.
  • Gain insights into how patients work best with industry.
  • Understand what the patient is looking for and why it’s
    important.
  • Discuss best practices for enhanced collaboration in the
    future.

RESEARCH & DEVELOPMENT

  • Integration of the patient perspective into the development
    process
  • Patient-based evidence that improves the alignment of
    development activities with the needs of patients
  • Key opportunities and challenges when working virtually
  • Top tips for effective virtual patient and public involvement
  • End-to-end digital technologies enabling real-time access to
    data flows and insights.
  • The future: the value of continuing working virtually
  • Innovative trial technologies for decentralised clinical trials
  • Best strategies to address common pitfalls and challenges
  • Considerations to optimise patients clinical trial experience
  • Review existing regulatory and ethical tenets of research
    and how they must be incorporated into standard practices
    when implementing decentralization.
  • Educating and empowering the trilogy of research –
    sponsors, ethical review boards and the research site to
    fulfill the mission of decentralization.
  • Explore and partner with existing health care solutions to
    enable established programmes
  • Collaborate with shareholders to provide innovative DCT
    strategies to all research sites.
  • Innovative trial technologies for decentralised clinical trials
  • Best strategies to address common pitfalls and challenges
  • Considerations to optimise patients clinical trial experience

CHALLENGES & POTENTIALS OF PATIENT ENGAGEMENT

  • The value of engaging and communicating with the patient in every part of the clinical research process
  • Examining the right approach for patient and industry to positively impact healthcare costs and patient outcomes
    through patient engagement
  • How can patient expertise create significant value to the industry?
  • What are the best practices and strategies to guarantee that patient centricity is at the forefront of pharma
  • How knowledge can reduce the fear of Pharma and ultimately save lives.
  • What do we really know about patient safety, both as an industry and an individual and what are the challenges we
    face?
  • How can technology play a role in ensuring patient safety, compliance and pharmacovigilance?
  • How we can leverage individual and collective data to ensure proper care and Quality of life while reducing damage,
    saving time and money.
  • Incorporating robust and meaningful patient engagement for a more informed decision-making
  • Enhance understanding and use appropriate methods to capture patient understanding of the benefits and risk
    outcomes
  • How to best communicate patient information to support a patient-centric ecosystem
  • What are logistical and financial challenges which increasingly impact all clinical trial stakeholders
  • Tailored approaches to travel services for the patients
  • Direct-to-patient
  • Innovative reimbursement programmes
  • How to ensure patient safety and reliability
  • The importance of real-world patient data democratization
  • Common challenges in clinical data that hinders clinical trials
  • Strategies in overcoming these challenges
  • How to seamlessly integrate real-world data from a variety of sources?
  • Understanding complexities and addressing challenges faced by the industry in setting up end-to end supply chain for
    cell and gene therapies
  • Best practices and lessons learned that guarantees effective manufacturing and delivery of CGTs to the patients who
    needs them the most
  • Robust technologies and innovative platforms that connects therapies with patients both in clinical and commercial scal
  • Putting the patient first achieves the best experience and outcome for that person and their family
  • Improve communication from staff shift-changes in a hospital to getting the patient discharged faster
    Setting expectations soon
  • Updating goals and outcomes; timely

 

  • Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully
    incorporated into drug development and evaluation.
  • Patient’s input to improve quality, relevance, safety and efficacy of drug development
  • Challenges and opportunities for patient-centric product design
  • The role of respective stakeholders and the way they interact, from the early steps of drug development to access inreal
    life?
  • Stakeholders unlocking innovations at a remarkable new speed
  • Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
  • Addressing challenges faced by individuals when accessing healthcare within both developing and developed nations
  • The importance of personalised patient care
    Increasing adoption and shifting to remote and digital care
  • Data sharing to enhance patient experience patient experience and outcomes in real-time.

Event sponsors

 Patient Centricity & Collaboration World Congress 2023 Europe Partners 

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Testimonials

what people say

Thank you for a good experience with the PARADIGM Global Events… very high level, very good Organization, we overpassed our expectatives, we will be pending for another congress related to pharmaceutical and biotech… we learned a lot, and i think that the content of agenda was state of the art, thank you again.
Salvador Berrios
ERP/ CRM / Product Configurator Manager
The consistently high quality of international faculty was most impressive. It was also obvious that they were carefully chosen not only for their particular expertise but also for their ability to communicate the subject matter to clinical and non-clinical participants alike. As market access consultant for pharma clients of various sizes, I now feel much better prepared to explain the nuances & dynamics involved in bringing their products to market. In addition, I am in a much better position to intelligently advice my clients & help them set realistic expectations
Thomas Martin
Associate Vice President, VCGA - Quintiles
I was impressed with the organization of this event. I attend many conferences per year and find the organizers on site to be detached and not focus on good service to the delegates. This team was even providing weather forecast warning to ensure everyone was aware and made appropriate plans. Well Done.
Adriana E. Manzi
PhD, Managing Director, Atheln, Inc

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