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Day 2


Patient empowerment and understanding to inspire and create a meaningful impact.

Holiday Inn London - Bloomsbury, an IHG Hotel, London, United Kingdom

Day 2 - Tuesday 27th February 2024


  • How companies can advance health equity through people- and patient-centered frameworks.
  • Specific domains of action for addressing health equity through people and patient engagement;
  • Success measures of efforts to advance health equity
  • What can the industry do to promote health equity in the future?


Christel Paganoni-Bruijns, former Global Head Community Engagement, Swedish Orphan Biovitrum AB

Neil Betteridge, Co-Chair, Chronic Pain Policy Coalition

  • The AstraZeneca Global Patient Engagement Team has worked across the development lifecycle to embed patient-driven solutions resolving common development challenges. We will discuss how we uplifted the capabilities of our evidence teams to engage patients across the development continuum and will present examples showing what we do to impact study planning, recruitment and conduct, leading to tangible results for better patient outcomes.

Marie Eckerd, Global Patient Engagement Director R&I, BioPharmaceuticals Medical, AstraZeneca

  • Limited research into the impact of patient involvement in HTA
  • The work is a huge undertaking for PAGS especially smaller ones
  • The impact of involvement on the organisation and individual
  • Solutions and sustainable future for PAG involvement

Lindsay Birrell, Co- CEO, Realise Advocacy, Chair of trustees, Medics 4 Rare Diseases
Josie Godfrey, Director, JG Zebra Consulting, Co-Founder and CEO, Realise Advocacy

  • The development of qualitative research in healthcare settings
  • What does good look like?
  • Examples of practical and imaginative qualitative methodologies
  • The benefits of scientific rigour to develop insight into patient and carer experience.

Dr Liz Clarke, Patient Engagement Team Lead, Kings College London

  • This presentation aims to provide a comprehensive overview of the transformative power of data in optimizing patient engagement strategies, leveraging KPIs and metrics, and utilizing patient experience data to inform decisions by the patient community, industry, health care professionals, regulatory/HTA agencies, and the investment community for better health outcomes.

Hayley Chapman, Sr Program Director, PFMD

  • The Patient Partnership Index: what it is and why it began
  • Examples of best practice from the Index to inspire your own patient engagement programmes
  • Why companies and patient organisations should enter the Index

Jenny Ousbey, CEO & Founder, OVID Health

  • The journey to empowerment
  • Walking the talk of Patient Centricity
  • The potential of non-competitive collaboration

Bronwyn Lewis, Global Head of Patient Engagement, Boehringer Ingelheim International GmbH
Roi Shternin, Founder & Chief Patients Officer, Chronically

  • How to engage patients in clinical research?
  • 3 reasons why patients are not involved in the design and preparation phase of a clinical trial
  • 3 reasons why patients should be involved in the design and preparation phase of a clinical trial
  • How can patient feedback contribute to a more successful clinical trial
  • Where do I start with engaging patients in a clinical trial?

Rasmus Hjorth, Head of Communication, James Lind Care

  • The problem with “patients at the centre”….
  • Always a bridesmaid and never a bride!
  • The need for T.R.U.S.T.
  • The courage to change

Angela King, Independent Patient Advocate, Independent Cancer Patients’ Voice

  • How to harness patient power
  • Using data to improve care
  • Opportunities for partnership

Robert Mitchell-Thain, CEO, PBC Foundation

  • Recognising key areas to ensure patients’ experiences, perspectives, needs, and priorities are captured and meaningfully incorporated into drug development and evaluation.
  • Patient’s input to improve quality, relevance, safety and efficacy of drug development
  • Challenges and opportunities for patient-centric product design
  • The role of respective stakeholders and the way they interact, from the early steps of drug development to access in real life?



Carole Scrafton, Director & Co-Founder, Flutters and Strutters
Rasmus Hjorth, Head of Communication, James Lind Care
Naomi Litchfield, Director, Patient Advocacy, Bionical Emas

Dr. Sally Dews, Senior Medical patient partnership Manager, Pfizer 

  • Understanding the drivers for innovation in pharma
  • Partnering with patients and placing patient well-being at the core of all initiatives
  • Real-world data and patient-reported outcomes presents the power and the potential to redesign healthcare
  • Innovative approaches for direct-to-patient assume significant importance for driving patient-centricity
  • Technologies that enhance the patient-centricity in pharma


Gabor Purman, Patient Advocacy Director, Kyowa Kirin International
Carole Scrafton, Director & Co-Founder, Flutters and Strutters
Roi Shternin, Founder & Chief Patients Officer, Chronically  

Janik Jaskolski, Chief Product Officer and Co-Founder, Semalytix  

Robert Mitchell-Thain, CEO, PBC Foundation

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