5th PATIENT CENTRICITY & COLLABORATION WORLD CONGRESS 2024 EUROPE
Patient empowerment and understanding to inspire and create a meaningful impact.
Copthorne Tara Hotel London Kensington, London, UK
Day 1 - Monday 26th February 2024
Emma Sutcliffe, Global Patient Officer, Ipsen Biopharma
TRENDS & STRATEGIES IN INTEGRATING PATIENT VOICE
- The value of engaging and communicating with the patient in every part of the clinical research process
- Examining the right approach for patient and industry to positively impact healthcare costs and patient outcomes through patient engagement
- How can patient expertise create significant value to the industry?
- What are the best practices and strategies to guarantee that patient centricity is at the forefront of pharma?
Moderator:
TBC
Panelists:
- Empowerment, experience, evidence – the impact of the patient voice
- Engagement delivers value as a triple win – for patients, for pharma, for society
- Ensuring voice to value in the ‘Patient 3.0’ era
Emma Sutcliffe, Global Patient Officer, Ipsen Biopharma
- Many biotech/pharmaceutical companies are talking about ”Patient Centricity”, but how can a company actually operate in a patient-centric way to create meaningful value?
- Learn best practices to transition from being product centered to patient centered
- Discuss strategies to embed patient centricity throughout your organization.
Christel Paganoni-Bruijns, Global Head Community Engagement, Swedish Orphan Biovitrum AB
- Patient Centricity requires new mindsets, relationships – and structures, company-wide.
- No stage of development, from discovery through delivery, gets a pass.
- No company function continues as before.
- Company culture changes, too.
- This isn’t easy but the results are worth the journey: to improve outcomes for patients and business performance alike.
- If Patient Centricity is a fad, then it’s a failure. It should be the new way of doing business.
Bronwyn Lewis, Global Head of Patient Engagement, Boehringer Ingelheim International GmbH
- Sharing insights into a live real-world example of this type of partnership
- Explaining the roles and responsibilities in achieving a positive outcome
- Providing key learnings to the evolving process
- Supplying the audience with guiding principles for future partnerships
- Learn about the latest technologies that can improve the efficiency and effectiveness of clinical trial design, addressing issues like increasing complexity
- Discover the principles and best practices for clinical trial design that can increase the likelihood of success, through a combination of literature analysis and practical experience
- Examine the challenges faced by patients during clinical trials and learn about potential solutions that can reduce the burden and increase the benefits for patients
- Understand where patient centricity can advance the interests shared by industry and the patient community
- Consider how focused goals and programs can strengthen research and development, commercialization and access
- Focus on opportunities to integrate patients, caregivers, consumers and advocates’ key concerns and insights into company plans and decision making
- Discuss applications of this targeted approach to your patient centricity goals and programs
Moderator:
Panellist:
- The international perspective on what people with type 1 diabetes want from industry, according to international region
- The Nobel Prize winning discovery of insulin in 1921 and how that legacy defines what people living with type 1 now want from industry
- Type 1 diabetes patient priorities for the pharmaceutical industry and medical device industry
- The rise of citizen science and how that changes the relationship that type 1 diabetes patient advocates want to be engaged with in industry research and development
- A framework for patient engagement
Hilary Nathan, Policy, Communications & Community Engagement Director, JDRF
- Education of the process of clinical trials
- Listen to the Patient needs and help them to understand what the focus of the trial is.
- Understanding Pharmaceutical costs of trials and research
- Dealing with an illness with multiple organ involvement.
- Rare Disease
- Why there is a need for Patient involvement in publications framework
- What is the framework?
- How did we co-create the framework with cross-functional team and patients – the methodology
- Ongoing implementation, feedback loops early applications and expected impact
Ana Marija Gjurovic, Global Head Patient Engagement, AstraZeneca
- Contributions that advocacy groups can make to clinical trial development
- The importance of knowing the people, their disease, and its burdens
- Successful collaborations are a win for all
- Patient perception and usability of drug products is critical for efficacy of prescribed treatments.
- Drug products should be designed to meet the specific needs of the target patient populations.
- A patient centric drug product design approach is critical to support optimal therapeutic outcomes for drug products.
- Roll out of digital technology will support the implementation of a patient centric mindset for drug product design.
- Case-studies for drug products developed via patient centric drug product design
- What is high realistic simulation?
- How we can simulate a clinical trial protocol.
- Role of patients and professionals in simulation.
- Return on the investment and return on the engagement
Begoña Nafría Escalera, Coordinator of eYPAGnet, Hospital Sant Joan de Déu
- Integration of the patient perspective into the development process
- Challenges and strategies for improving study protocols
- Streamline your clinical trial process to drive enrollment
- Contributions that advocacy groups can make to clinical trial development
- The importance of knowing the people, their disease, and its burdens
- Successful collaborations are a win for all
Moderator:
Panellist: