8th PATIENT CENTRICITY & COLLABORATION WORLD CONGRESS 2026 EUROPE
A strategic approach prioritising the patient's needs, preferences, and values from drug development to treatment and beyond.
Hilton London Kensington, London, United Kingdom
Day 2 - Wednesday 26th February 2026
CHALLENGES & POTENTIALS OF PATIENT ENGAGEMENT
- Fostering community engagement and build trust
- Designing a patient-centric, inclusive trials
- Cultivating an inclusive research environment
- Leveraging technology and data
- Adopting regulatory requirements and institutional support
Moderator:
Panelists:
- The WHY: diversity equity & inclusion, environmental social governance
- The WHAT: information & communication technologies (ICTs)
- The HOW: accessibility by design and shifting-left with universal design
Dr. Stephen Framil, Corporate Global Head of Accessibility, Merck & Co., INC
Dr. Ambily Banerjee, Senior Director, Clinical Representation Excellence, J & J*
Lea-Isabelle Proulx, Patient Voice Partner, Roche*
- Why timing matters: Too early, too late, or just right?
- Striking the balance: Impact, ethics, and resources in tension
- Lessons learned so far: What real-world experience shows us
- Looking ahead: What needs to change for the future
Dr Liz Clark, Visiting Lecturer & Patient Engagement Theme Lead, King’s College London
- To Follow Shortly
Sumira Riaz, Patient Engagement/Health Psychologist Consultant, Founder, Unboxed Psychology
- The importance of data democratization
- Common challenges in clinical data review that hinders clinical trials Strategies in overcoming these challenges
- How to seamlessly integrate data from a variety of sources?
- How to improve safety review efficiencies and reduce the timeline to critical studies?
Reserved
- Learn about the latest technologies that can improve the efficiency and effectiveness of clinical trial design, addressing issues like increasing complexity
- Discover the principles and best practices for clinical trial design that can increase the likelihood of success, through a combination of literature analysis and practical experience
- Examine the challenges faced by patients during clinical trials and learn about potential solutions that can reduce the burden and increase the benefits for patients
Keith Berelowitz, Founder/CEO, pRxEngage Inc
- Putting the patient first achieves the best experience and outcome for that person and their family
- Improve communication from staff shift-changes in a hospital to getting the patient discharged faster
- Setting expectations soon
- Updating goals and outcomes; timely
Lara Bloom, President and CEO, The Ehlers-Danlos Society
- Jasmine will share how BMS’s Global Purpose & Patient Experience team is embedding patient voices, carers’ insights, and community trust into every phase of development and delivery of its medicines
- Drawing from her background in nonprofit advocacy and her leadership at BMS, she’ll explore how trust building enables innovation and advances both mission and purpose
- She will spotlight tangible enterprise tools, like BMS’s Universal Patient Language (UPL) and PEER programs, that translate empathy into access, and communication into clarity.
- The talk will include lessons learned from carers, medically underserved communities, and patient collaborators who have reshaped how BMS designs, speaks, and shows up.
- Jasmine will offer a human-centric lens on trial transformation, showing how purpose-driven decisions accelerate recruitment, improve retention, and deepen real-world impact.
Jasmine Greenamyer, VP, Global Purpose & Patient Experience, Corporate Affairs, Bristol Myers Squibb
- Timing Multistakeholder Collaboration Across the Innovation Lifecycle
- How Collaboration Works: Mechanisms, Models, and Mindsets That Enable Success
- What Good Looks Like: Defining Meaningful Patient Engagement in Multistakeholder Settings
- Breaking Silos: Aligning Diverse Stakeholder Priorities to Accelerate Impact
Federica Castiglione, Sr Director Patient Advocacy & Engagement EMEA, Menarini Stemline
- Leveraging patient input and real-world data to improve relevance, safety, and efficacy
- Designing patient-centric products: key challenges and opportunities
- Redefining stakeholder roles—from early development to real-world access
- Ensuring patient voices drive not only clinical trial design but also long-term treatment adherence and outcomes in diverse populations.
Moderator:
Panelists:
Mohammed Kofi Yasimo, Vice President, Hepatitis Foundation of Ghana
- How can we move patient engagement from a checkbox to true co-creation and shared decision-making?
- In what ways does genuine patient engagement improve health outcomes and trust?
- What are the biggest barriers that prevent meaningful patient involvement?
- How can we effectively measure the impact of patient engagement beyond satisfaction surveys?
- Are we including diverse and underserved patient voices in our engagement efforts?
- How do we ensure patients are partners and collaborators, rather than just observers or token participants?
Moderator:
Panellist:
Dominic Shadbolt, Expert Patient, Founder, theMSguide.com
